News & Updates

Will new FSSAI rules undercut baby food law?

The Times of India||11th March 2018

 

 

 

More about National Rare Disease policy

Business Standard||8th March 2018

 

 

 

Lack of policy on rare diseases a bane for kids

The Times of India||28th February 2018

 

 

 

RACE FOR 7: BANGALORE WALKS FOR RARE DISEASES~ Raising Awareness for Rare DiseasesRare Disease Policies for Rare Disease patients

CITY HUB NEWS

 

 

 

Asia needs a legal framework to combat rare diseases

Biospectrum||8th February 2018

 

 

 

Metabolic disorders in kids can lead to retardation

Deccan Chronicle||18th January 2018

 

 

 

Patients with rare disease appeal to govt for funds

Citytoday||18th January 2018

 

 

 

What If Editing Genes Could Fight Rare Diseases? [Science And Technology Podcast]

European Parliamentary Research Service Blog||11th January 2018

 

 

 

Slash import duty on diets for kids with metabolic error: MERD

Business Standard||14th January 2018

 

 

 



FSSAI launches Diet4Life initiative to create ecosystem for IEM patients.


FnBnews||18th October 2017


 


 


 



				

			
 

				
				
				

					
Rare Diseases Centre hit by fund crunch


Indian Express||4th September 2017


 


 


 



				

			
 

				
				
				

					
Prick the heel for a healthy life


THE HANS INDIA||29th September 2017


 


 


 



				

			
 

				
				
				

					


Govt forming standards for special diets to help children with rare metabolic disorders


Hindustan Times||4th August 2017


 


 


 



				

			
 

				
				
				

					
Tamil Nadu set to screen newborns for inborn metabolic disorder


Indian Express||23rd June 2017


 


 


 



				

			
 

				
				
				

					
Kids with metabolic disorder suffer as parents depend on imported food


The Times of India||10th February 2017